Boy do I hurt today. I spent last night at work. Pain running down my back and shooting pain running down both legs..Then my legs started to cramp on me. That was fun. I snuk a few minutes with my shoes off. hiding behind the counter. Hey as usual I made it through work. But how much can I take before I can't do it any more. People say I am strong, but I don't think I am that strong. Stuborn maybe thats more the word for it. I am not going to let this get me down , but it gets harder and harder each day. Especially this morning when I couldn't move without something hurting. The walk with the dogs was the biggest chore I did today. Now I sit behind the computer whining about my aches and pains. Then I will head for the couch and put my feet up and putll yarn off a ball to make it into something before the family gets home and demansds my attention. Aw!!! a day off. Only one I will get this week as they changed my schedule and now I have Saturday off instead of Wednesday. Sucks!!! Saturday family is home and I don't get the me time I like to have.
Well as for the rest of my life. I started with a specialist here a couple of weeks ago. She did a top to bottom exam of me. You see I have been feeling poorly for the past ten years on and off. Always something hitting me and they could never put two and two together and figure out what was causing the problem. Well it is sort of figured out now as I am seeing a Rhuemetolagist. Last year a blood test was done and found out I have arthritist. A year later of waiting. (Thanks Medical services for the year wait) So be it why I am going to a Rhuematolist. She says the it is something called Sjorgrens Symdrom. This is an auto ammune desease that starts attaching my soft tissue. This started about ten years ago when I got a sinus infection that just wouldn't go away. We were renting a house that had mould in it. Didn't know it at the time until we moved to this house and the sinus infection left me lickity split, but the aftereffects are with me. I started getting things I never had before. I would get bile stones and more sinus infections and colds that I never had pronblems with started getting more frequent and hitting me harder.. I've been hit with what seemed like the flu or food poisening a couple of times. I have never had the flu except when I was a kid Soon after I started to feel pain in my side around my rib area. which eventually moved to my hip. I have had all sorts of test and small operations in order to help . Figuring that it might be this or it might be that. Cameras down my throat and another the other way. Pretty pictures but no answers. Later after that I lost the spit in my mouth and then my eyes started to loose their moisture.Tear ducts not working. Docs say it was just medication at the time I was taking. WRONG!!! Now the pain is in my hip and is starting to move to the rest of my body. I just fell like shit sometimes and others not too bad.
So now with the last blood test I had it say well I have arthritis. Oh goody. Pain for the rest of my life. This Doc got me into see a specialist. Took a year to get to see her. An am finally in. She figures it is Sjorgrens syndrom.. This is that the ammune system will think of my soft tissue as being foreign to me and attach it. This is why I have no spit ducts or tear ducts any more. I am also loosing moisture elswere in my body which makes some things hard on me. The great voice I had a few years ago to sing with the choir of Sweet Adelines is no more. Just a lot of scratching when I hit various notes. I can still hold a tune but I don't think you want to hear me sing it. Sounds just plain awful sometimes. I loose my voice every now and then. Now I am starting to fell tightness in my chest when I am breathing. so I figure it is moving further down my body.. She also figures that I have rheumetory arthritis to go along with this. Plus a few other things that she will varify before she starts telling me the good news.
Tomorrow I start with the test. She did a whole slew of blood tests. The vampire has struck. Took about 16 viels of blood. I have had xrays from top to bottom. That took about an hour laying on a cold slab while they take picture. I have been radiated. I have a month long of appointments to keep. I am going to hospital tomorrow to have a bone density test. I don't know what that will curtail of of but doesn't sound that great. As I am now an inch shorter then what I was most of my life. Shrinking violet I am. Mamagran the week after that. Yeah pancake time. Then in two weeks I am going to an Octoligist to have my eyes scaned as sometimes I can see just fine and others it is out of wack. Then the end of the month I am having some glands checked out in a biopsy to make sure that they are not changing on me. These are some lumps I have on my neck that I have had since I was a kid. Plus one is being removed because it makes me look like I have a hump on my shoulder. By a plasic surgen a little nip and tuck here and there please. Last but not least back to the rheumatologist for result.
In the mean time I am sitting on pins and needles to see what will become of all this. The waiting game is the worst.. I am swelling up now and then and the pain sometimes is just unbearable. Sleep I can do when I get comfortable, but I love to take up the whole bed to get that way which doesn't leave much room for anyone else and he does tell me about it quite often. What I really don't like is I am ALWAYS SO FREACKIN COLD!!! Everyone around says how nice and warm it is and I am in my fleece jacket yet. Lots of covers on the bed, while the windows are opened so everyone else is happy. He even suggested putting on the air conditioner the other day. I just grabbed another sweater. I guess that means no then. YEAH YOU GOT THAT RIGHT.
Well they say exercise is the best medicine. I am trying but it real hard to do when it just hurts more. The couch looks so inviting so I will just sit and relax for awhile. I know, I know. Get up and get moving.HMM maybe later.
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